Principal Investigator: Michael Benatar, MD, PhD
Site-PIs:
- Michael Benatar, MD, PhD (University of Miami)
- Richard Barohn, MD (Kansas University Medical Center)
- John Ravits, MD (University of California San Diego)
- Carlayne Jackson, MD (University of Texas Health Science Center San Antonio)
- Jonathan Katz, MD (California Pacific Medical Center)
- Andrea Swenson, MD (University of Iowa)
- Ted Burns, MD (University of Virginia Health System)
- Jaya Trivedi, MD (University of Texas Southwestern)
- James Caress, MD (Wake Forrest University)
- Eric Pioro, MD (Cleveland Clinic Ohio)
- Rebecca Schule, MD (University of Tuebingen)
The CReATe Consortium, initiated and led by Dr. Michael Benatar, is a new member of the NIH’s Rare Disease Clinical Research Network (RDCRN). The scientific goals of CReATe PGB, the first study undertaken by the CReATe Consortium, are to better understand the relationship between phenotype and genotype in ALS and related disorders (including PLS, HSP, PMA, FTD and MSP); and to develop biomarkers that might be useful in aiding therapy development for this group of disorders. Each year CReATe will also fund 1-2 pilot biomarker discovery project(s) that will utilize biological samples collected from patients who are enrolled in PBG (or other research studies) through the CReATe consortium.
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