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Dr. Michael Benatar awarded $6.24 Million NIH Grant for Creation of Rare Diseases Clinical Research Consortium

MIAMI, FL –The National Center for Advancing Translational Sciences and the National Institute of Neurological Disorders and Stroke have granted a $6.24 million cooperative agreement award to Dr. Michael Benatar for the establishment of a Rare Diseases Clinical Research Consortium. The consortium, to be called CReATe (Clinical Research in ALS and related disorders for Therapeutic […]

Enrollment closed for the Phase II/III Trial of Arimoclomol in SOD1+ Familial ALS

MIAMI, FL – The Principal Investigator at the University of Miami announced that enrollment has closed for the FDA-sponsored phase II/III randomized, double-blind, placebo-controlled trial of the experimental drug Arimoclomol, in SOD1+ familial ALS. This administrative decision to close enrollment at the end of the phase II component was made in consultation with the trial’s […]

Miller School ALS Expert Helps Discover New Genetic Causes for Multi-System Degenerative Disorder

The Miller School’s Michael Benatar, M.D., Ph.D., associate professor of neurology, was part of an international team of researchers that discovered two new genetic causes of a multi-system degenerative disorder that typically affects the brain, muscle and bone, and of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease. Published March 3 in the journal Nature, […]

ALS Research and Patient Care at the Miller School Gets $1M Boost

The ALS Recovery Fund, a steadfast ally in the fight against ALS, has pledged another $1 million to the Department of Neurology at the University of Miami for its continued ALS research and patient support. The gift will expand upon the Miller School’s existing programs and provide additional resources, including researchers and a dedicated health […]

Neurology interviews Dr. Benatar

This week, Neurology, the official journal of the American Academy of Neurology (AAN) features an interview with Dr. Benatar about the Pre-fALS study. To listen to the podcast, please click on the link below and scroll down (if necessary) to the October 16, 2012 podcast entitled “Pre-Symptomatic Studies in ALS: Rationale, Challenges and Approach”. Neurology […]

11th Annual Lou Gehrig’s Disease 10K Run & 5K Run/Walk

The ALS Recovery Fund has been a major supporter of ALS research and patient care at the University of Miami. The annual run/walk will be held on Saturday, May 12th at 7:30 am at the Dinner Key Auditorium on South Bayshore Drive. Click the ALS Recovery Fund logo to learn more.  

New genetic cause of ALS identified!

For a long time scientists have known that, on chromosome 9, there is a gene of great importance to both ALS and frontotemporal dementia (FTD). This gene has however remained elusive…until now: Thanks to the participation of fALS patients and their families in our research studies, we have been able to contribute to the efforts […]